Ineffective or even dangerous fad treatments for autism, always a problem, seem to be growing more pervasive, according to researchers who studied the problem.

“Developmental disabilities, such as autism, are a magnet for all kinds of unsupported or disproved therapies, and it has gotten worse as more children have been diagnosed with autism,” says James Mulick, PhD, professor of pediatrics and psychology at Ohio State University, Columbus. “There’s no cure for autism, and many parents are willing to believe anything if they come to think it could help their child.”

Mulick chaired a symposium on “Outrageous Developmental Disabilities Treatments” last month in San Francisco at the annual meeting of the American Psychological Association. The symposium included presentations by several of Mulick’s students at Ohio State, who participated in a graduate seminar on fad treatments in autism.

Tracy Kettering, a doctoral student in special education at Ohio State, says a Google search for the phrase “autism treatment” yields more than 2.2 million matches.

“You get hundreds of different types of therapies that come up, and many have quotes from parents that claim a particular therapy ‘cured’ their child,” Kettering says. “It’s no wonder that parents want to believe. But, very few of these treatments have any evidence to support them.”

The number and range of fad treatments has seemed to grow in recent years as more children have been diagnosed with autism, says Mulick, who is also editor of a book on fad treatments called Controversial Therapies for Developmental Disabilities: Fad, Fashion, and Science in Professional Practice (Lawrence Erlbaum, 2004).

Mulick says when he began treating autism in the 1970s about three children in 10,000 were said to have autism. Now, reports are one in 166 children have the condition. The number of cases has mushroomed because of better diagnoses, and a changing definition of autism that includes a broader range of disorders.

Some of the newer, more popular fad treatments for autism involve special diets or nutritional supplements. Megadoses of Vitamins C and B6 are popular, as well as supplements with fatty acids like omega-3s.

A casein and/or gluten-free diet, which involves eliminating dairy and wheat products, has also gained favor with some parents.

While many of these treatments have never been adequately studied, that doesn’t mean they aren’t promoted.

And while some fads are simply ineffective, others can even be dangerous, Mulick says. Chelation therapy, which involves taking medicines to remove the heavy metal mercury from the body, has reportedly led to the death of at least one autistic boy receiving that treatment. Chelation therapy was also touted years ago as a new treatment against some forms of cancer but was eventually shown to have no helpful effect.

Many parents try multiple approaches, hoping at least one will help. Kettering says one survey she found suggests that the average parent of a child with autism has tried seven different therapies.

“We’re not saying that all of these treatments don’t work or that they are all dangerous,” Kettering says. “But the research hasn’t been done to suggest that most of them are effective or even safe.”

Many of the treatments may have just enough basis in scientific fact to attract attention, even if the treatment itself is unproven.

For instance, most scientists believe that many cases of autism are caused by genetic mutations, and some mutations can be caused by various chemicals that we encounter in our everyday lives, Mulick says.

But still, there is no evidence that any particular chemical causes mutations that lead to autism, as some have claimed.

“There’s a shred of truth in the rationale presented for some fad treatments, and that is enough for some people to go with,” Mulik says. Another reason that fad treatments persist has to do with the natural course of autism, he says.

Autism, like many conditions, has cycles in which symptoms get worse and then get better. Parents tend to search for treatments when symptoms are getting worse, and when their children get better – as they do in the normal course of disease – parents credit the new therapy.

“It’s natural to have this bias that the therapy you’re trying has had some positive effect,” Mulik says. “People want to believe.”

While other treatments are still being investigated, right now the only therapy that has been shown to have a long-term positive affect on autism is called Early Intensive Behavioral Intervention (EIBI), Mulick says.

EIBI is a highly structured approach to learning, in which children with autism are taught first to imitate their teachers. But this treatment is very time-consuming and labor intensive. It involves one-on-one behavioral treatment with the child for up to 40 hours a week for several years.

“It’s expensive and difficult for many parents to use,” Mulick says. “That’s got to be one reason other treatments look attractive to them.”

He says other treatments and therapies are being studied. However, it takes years to test treatments for autism because of the nature of the disease and problems with proving effectiveness.

“Autism studies are a long, time-consuming, and expensive process,” Mulick says. “And some of the fad treatments being used today would never be approved for testing – they are just too dangerous.”

Source: Ohio State University